Post Run delirium = bright pink socks, plaid pajama bottoms, brown shirt and Grey sweatshirt, oh yea, no bangs. Quite the picture! All this loveliness with an elevated knee on the couch and a bag of ice. Running is kicking my butt! Wow! My goals were simple when I got home: 1) take a shower 2) Make it to the couch. These goals did not include fashionable attire - So success was had.
My goals for the marathon are pretty much the same and are also simple: 1) Don't have chest pain 2) Finish upright 3) Beat the sag wagon - (I'm beginning to get nervous about this one. I honestly can't figure out how I am STILL so slow.)
Today we ran 14 miles. How do I know this since I usually only pay attention to time? I got this fancy new watch, the Garmin 301, that tells me EVERYTHING! Way more than I want to know, including my heart rate. Having a watch that tells all can be problematic for the out of shape runner. Ignorance was bliss. Now, unfortunately, I am aware of how close to a heart attack I actually am! Yikes! I had been doing the 3:1 interval but today had to take that down to a 2:1 now that I know what my heart rate really is (don't ask)! Turns out this fancy Garmin is also rude. The alarms are always going off: Heart rate too high, slow down! (translated: slow down chubbs) immediately followed by: Pace too slow, speed up! (translated: speed up slacker!) So far the alarms are the most used feature. Rude, just plain rude!
At about mile 8 I get a phone call from my mentor from last season's Nike race, Courtney. She is also on the Orting Trail running with the Seattle Rock and Roll Team and they are done with their practice and are back at the parking lot. I thought she was calling to offer me a ride (which I would have taken!) but instead she is calling to tell me they are about to tow my car! WHAT?!But don't worry. Her team picked it up and moved it and I can read about it on Facebook! I love that girl and that team - they saved my bug and the pictures are great!! Go to facebook to see some TNT teamwork in action!!
When I finally get back to the parking lot my legs feel like lead and bricks and cement. My knee hurts, my bursitis hurts, my hair hurts! My whole body is numb. I have my fake smile on and I am beginning to wonder if I will make it to my car. As I'm limping to the Beetle, with my fake smile on, I began to have the oddest sensation on my leg...it's starting to get my attention! I started to panic just little thinking this is way worse than I thought...I think I just became incontinent - did I just pee on myself? Oh my gosh! OK, don't panic, there is no way my bladder fell out! Did it? If I can't run 14 miles withouut losing my bladder how am I going to run a marathon? Am I imagining this? More moisture on my leg...I stop in my tracks. I'm starting to panic just a little more thinking, how am I going to tell all those generous people who gave me money to run that I can't run AGAIN because another organ fell out. Then...ohhh.... I breathe the biggest sigh of relief...I put my water bottle back upside down and it's leaking down my leg! Oh, thank God!
Now, for an update on Lew's transplant (which is a thousand times harder than a wimpy 14 miles!) sent from Lew's letter:
"We recently received the results of the latest bone marrow biopsy. It's been 28 days since the transplant using my brother Bill's stem cells. The news is good. His cells are engrafting. Measured in a couple of different places his cells make up either 67% or 56% of the cells located there. The transplant team would have been happy with any number over 50%. The take home message is that Bill's cells are moving in! Right now I'm a mixed chimerism individual with my own marrow cells still working and Bill's new cells moving in next door and setting up shop. Additionally, the count of myeloma cells (bad buggers) in my body is markedly decreased on this biopsy, though the variance could be mostly where the sample originated as the distribution of myeloma cells in bone marrow is not homogenous.
I've gotten through the first month with very little symptoms and side effects, mostly an upset (and at times rebellious) gastro intestinal tract. I had some cardiac arrythmia, but a change in drugs seems to have eliminated that pesky problem. We are required to stay close in the Seattle area for 100 days post transplant. As Bill's cells engraft and set about creating an immune system, the danger to me is that his cells might see me, or parts of me, as foreign and mount a response to attack my cells. This is called graft versus host disease (GVHD) and it can prove fatal. The biggest danger of GVHD is in the first few months (hence the 100 days post transplant), and the most common organs attacked are the skin, liver and kidneys. I am taking drugs to protect against most of the common problems associated with this type of transplant. Believe me it's a lot of pills everyday!
The other potential problem area is infection in general. I remain very immunocompromised and susceptable to infections and viruses. We do all we can to avoid those who might be sick, and just in general large crowds of people.
Rose and I continue to appreciate all your kind thoughts, prayers, and good wishes. I'd like you all to know that you are helping me in ways you can't even realize. As I pass the one year anniversary of dealing with this cancer, I feel uniquely blessed to have you as my friends and family."
Lew
Love ya Lew! GO TEAM!